GERSED Belgium asbl

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Link to our Facebook page:

https://www.facebook.com/GERSED.Belgique

We are also present on Instagram and Twitter: @gersed_belgium

GERSED Belgium is the Study and Research Group for Ehlers-Danlos Syndrome (Belgium) and was created in October 2017 by health professionals (specialist and general practitioners and paramedics), invested in Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders (HSD).

It is recognised as a NETWORK OF EXPERTS for Ehlers-Danlos syndrome on the ORPHANET Rare Disease Portal (INSERM - Institut national de la santé et de la recherche médicale).

GERSED Belgium is affiliated and recognised by theEDS Society.

The purpose of this association is:
-the exchange of knowledge and experience on the diagnosis and treatment of Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD)
-bibliographic information
-organisation of epidemiological surveys
-enriching the semiological knowledge of EDS
-therapeutic prospectives and evaluation of treatments
-organising training for health professionals and social actors
-the organisation of clinical and therapeutic education sessions for patients and their families
-producing scientific works and books on EDS
-to promote the social and therapeutic rights of EDS patients

MEMBERS OF THE GERSED BELGIUM BOARD.

President of GERSED Belgium:
Dr Stéphane DAENS, MD, Internal Medicine-Rumatology, Member of GERSED France, coordinator of an Orphanet/INSERM Expert Network, member of the EDS Society...
http://www.docteurdaens.be

Secretary:

Ms Patricia HERLANT, educator specialising in disability situations.

Treasurer:

Mrs. Tamara SADIGHI, Ortho-bandagist.

Members appointed Honorary Presidents:

Prof Em Claude HAMONET, MD, PhD, Physical and Rehabilitation Medicine, Doctor of Social Anthropology, Paris, France
http://claude.hamonet.free.fr/fr/sed.htm

Prof Em Rodney GRAHAME, CBE, MD, PhD, FRCP, FACP, FRSA, Rheumatologist, London, UK

Prof Jaime F. BRAVO, MD, PhD, Rheumatologist, Chile and USA
http://www.reumatologia-dr-bravo.cl
Prof Stephen W. PORGES, PhD, Behavioural Neuroscience, North Carolina, USA
http://www.stephenporges.com
Prof Anne MAITLAND, MD, PhD, Immunology, Allergology, Mast Cell Disorders, New York, USA
https://www.drannemaitland.net
https://www.mountsinai.org/profiles/anne-l-maitland
https://3-pillars-therapeutics.com/providers/

Prof Antonio BULBENA, MD, PhD, MSc,Psychiatrist , Barcelona, Spain.
https://www.uab.cat/web/postgraduate/phds/all-phd-programmes/coordination-1345467765326.html?param1=2013¶m2=1345657423398
Prof Andràs PALDI, Msc, PhD, Geneticist and Epigeneticist, Paris, France
https://www.ephe.fr/ecole/nos-enseignants-chercheurs/andras-paldi

Prof Michel VERVOORT, MSc, PhD, fundamental geneticist, Paris, France.
https://www.ijm.fr/895/equipes/cellules-souches-developpement-et-evolution.htm

Prof Marco CASTORI, MD, PhD, Medical Genetics, IRCCS-Casa Sollievo della Sofferenza Hospital, San Giovanni Rotondo (Foggia, Italy)
https://www.operapadrepio.it/it

Dr Pradeep CHOPRA, MD, MHCM, Algologist, Brown Medical School, RI, USA
http://www.painri.com

Dr Trinh HERMANNS-LËMD, PhD, dermatologist and dermatopathologist (electron microscopy), Verviers, Belgium

Dr Kambyse SAMII, MD, Internist and Cardiologist, Brussels, Belgium

Dr Georges OBEID, MD, internist and cardiologist, Brussels, Belgium
https://chirec.be/en/specialists-and-services/doctors/181187-georges-obeid/

Honorary Members:

Dr Isabelle BROCKMD, Clinical Research, New York, USA & President of GERSED France
http://www.qolify.org; http://www.3-pillars-therapeutics.com; http://www.gersed.com
Dr Katja KOVACICMD, Pediatric Gastroenterology, Wisconsin, USA
https://childrenswi.org/physician-directory/k/kovacic-katja-k

New book published by GERSED Belgium asbl (594 pages, available on Amazon, May 2020)

Available in Kindle ebook format (January 2022).

Dr Stéphane DAENS and 20 international collaborators (Belgium, France, USA, Chile)