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GERSED Belgium is the Study and Research Group for Ehlers-Danlos Syndrome (Belgium) and was created in October 2017 by health professionals (specialist and general practitioners and paramedics), invested in Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders (HSD).
It is recognised as a NETWORK OF EXPERTS for Ehlers-Danlos syndrome on the ORPHANET Rare Disease Portal (INSERM - Institut national de la santé et de la recherche médicale).
GERSED Belgium is affiliated and recognised by theEDS Society.
The purpose of this association is:
-the exchange of knowledge and experience on the diagnosis and treatment of Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD)
-organisation of epidemiological surveys
-enriching the semiological knowledge of EDS
-therapeutic prospectives and evaluation of treatments
-organising training for health professionals and social actors
-the organisation of clinical and therapeutic education sessions for patients and their families
-producing scientific works and books on EDS
-to promote the social and therapeutic rights of EDS patients
President of GERSED Belgium:
Dr Stéphane DAENS, MD, Internal Medicine-Rumatology, Member of GERSED France, coordinator of an Orphanet/INSERM Expert Network, member of the EDS Society...
Prof Stephen W. PORGES, PhD, Behavioural Neuroscience, North Carolina, USA
Prof Anne MAITLAND, MD, PhD, Immunology, Allergology, Mast Cell Disorders, New York, USA
Prof Andràs PALDI, Msc, PhD, Geneticist and Epigeneticist, Paris, France.
Dr Isabelle BROCKMD, Clinical Research, New York, USA & President of GERSED France
http://www.qolify.org; http://www.3-pillars-therapeutics.com; http://www.gersed.com
Dr Katja KOVACICMD, Pediatric Gastroenterology, Wisconsin, USA
New book published by GERSED Belgium asbl (594 pages, available on Amazon, May 2020)
Available in Kindle ebook format (January 2022).
Copyrighted by Stéphane Daens, 2020© ; Cover Artwork by RAAL (firstname.lastname@example.org), Descente, 2016©
14/01/2022. NEWS: release today of our book in English: "Transforming Ehlers-Danlos Syndrome" which IS available on Amazon platforms worldwide:
Copyrighted by Stéphane Daens, 2022© ; Cover Artwork by RAAL (email@example.com), Breaking down, 2016©
Corrected index of the book in English: https://irp.cdn-website.com/1d3a3ce3/files/uploaded/INDEX%20TRANSFORMING%20EDS%20UPDATE.pdf
Copyrighted by RAAL, Breaking Down, 2016© (firstname.lastname@example.org)
- Important : Mysterious cancellations of "New Patient" appointments from Dr Daens' server ...
- Update by Dr Stéphane DAENS, President of GERSED Belgium, on skin biopsy and ultrastructural examination of the dermis by electron microscopy (EM) in EDS:
- GERSED BELGIUM 2023 Annual General Meeting
- GERSED Belgium & EDS Society
- Sed and Autism Conference