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https://www.facebook.com/GERSED.Belgique

We are also present on Instagram and Twitter: @gersed_belgium

30/11/2022: Erratum: GERSED Belgium IS referenced by OPHANET, and NOT RECOGNIZED by the latter since it does not give recognition. This Erratum is to be applied to any mention of the bracket (ORPHANET/INSERM); indeed the syntax is, it seems, for some people, controversial. We make here a clarification of our former typography, ditto on any support given or published by GERSED Belgium in the past.

GERSED Belgium is the Study and Research Group for Ehlers-Danlos Syndrome (Belgium) and was created in October 2017 by health professionals (specialist and general practitioners and paramedics), invested in Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders (HSD).

GERSED Belgium is affiliated with the EDS Society Global Affiliation Program.

The purpose of this association is:
-the exchange of knowledge and experience on the diagnosis and treatment of Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD)
-bibliographic information
-organisation of epidemiological surveys
-enriching the semiological knowledge of EDS
-therapeutic prospectives and evaluation of treatments
-organising training for health professionals and social actors
-the organisation of clinical and therapeutic education sessions for patients and their families
-producing scientific works and books on EDS
-to promote the social and therapeutic rights of EDS patients

MEMBERS OF THE GERSED BELGIUM BOARD.
 

President of GERSED Belgium:
Dr Stéphane DAENS, MD, Internal Medicine-Rumatology, Member of GERSED France, Member of the EDS Society Global Affiliation Program (GERSED Belgium).
http://www.docteurdaens.be

Secretary:
Ms Patricia HERLANT, educator specialising in disability situations.
 
Treasurer:
Mrs. Tamara SADIGHI, Ortho-bandagist.
 
Members appointed Honorary Presidents:
 
Prof Em Claude HAMONET, MD, PhD, Physical and Rehabilitation Medicine, Doctor of Social Anthropology, Paris, France
http://claude.hamonet.free.fr/fr/sed.htm

Prof Em Rodney GRAHAME, CBE, MD, PhD, FRCP, FACP, FRSA, Rheumatologist, London, UK
Prof Jaime F. BRAVO, MD, PhD, Rheumatologist, Chile and USA
http://www.reumatologia-dr-bravo.cl
Prof Stephen W. PORGES, PhD, Behavioural Neuroscience, North Carolina, USA
http://www.stephenporges.com
Prof Anne MAITLAND, MD, PhD, Immunology, Allergology, Mast Cell Disorders, New York, USA
https://www.drannemaitland.net
https://www.mountsinai.org/profiles/anne-l-maitland
https://3-pillars-therapeutics.com/providers/
Prof Antonio BULBENA, MD, PhD, MSc,Psychiatrist , Barcelona, Spain.
https://www.uab.cat/web/postgraduate/phds/all-phd-programmes/coordination-1345467765326.html?param1=2013¶m2=1345657423398
Prof Andràs PALDI, Msc, PhD, Geneticist and Epigeneticist, Paris, France
https://www.ephe.fr/ecole/nos-enseignants-chercheurs/andras-paldi
Prof Michel VERVOORT, MSc, PhD, fundamental geneticist, Paris, France.
https://www.ijm.fr/895/equipes/cellules-souches-developpement-et-evolution.htm
Prof Marco CASTORI, MD, PhD, Medical Genetics, IRCCS-Casa Sollievo della Sofferenza Hospital, San Giovanni Rotondo (Foggia, Italy)
https://www.operapadrepio.it/it
Dr Pradeep CHOPRA, MD, MHCM, Algologist, Brown Medical School, RI, USA
http://www.painri.com
Dr Trinh HERMANNS-LËMD, PhD, dermatologist and dermatopathologist (electron microscopy), Verviers, Belgium
Dr Kambyse SAMII, MD, Internist and Cardiologist, Brussels, Belgium
Dr Georges OBEID, MD, internist and cardiologist, Brussels, Belgium
https://chirec.be/en/specialists-and-services/doctors/181187-georges-obeid/

Honorary Members
:

 

Dr Isabelle BROCKMD, Clinical Research, New York, USA & President of GERSED France
http://www.qolify.org; http://www.3-pillars-therapeutics.com; http://www.gersed.com
Dr Katja KOVACICMD, Pediatric Gastroenterology, Wisconsin, USA
https://childrenswi.org/physician-directory/k/kovacic-katja-k

New book published by GERSED Belgium asbl (594 pages, available on Amazon, May 2020)

Available in Kindle ebook format (January 2022).

Dr Stéphane DAENS and 20 international collaborators (Belgium, France, USA, Chile)

 

 

Copyrighted by Stéphane Daens, 2020© ; Cover Artwork by RAAL (raal.painter@gmail.com), Descente, 2016©

14/01/2022. NEWS: our book "Transforming Ehlers-Danlos Syndrome" is released today and is available on Amazon platforms worldwide:

1

Copyrighted by Stéphane Daens, 2022© ; Cover Artwork by RAAL (raal.painter@gmail.com), Breaking down, 2016©

1

Copyrighted by RAAL, Breaking Down, 2016© (raal.painter@gmail.com)

Note: 5 out of 5.