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30/11/2022: Erratum: GERSED Belgium IS referenced by OPHANET, and NOT RECOGNIZED by the latter since it does not give recognition. This Erratum is to be applied to any mention of the bracket (ORPHANET/INSERM); indeed the syntax is, it seems, for some people, controversial. We make here a clarification of our former typography, ditto on any support given or published by GERSED Belgium in the past.
GERSED Belgium is the Study and Research Group for Ehlers-Danlos Syndrome (Belgium) and was created in October 2017 by health professionals (specialist and general practitioners and paramedics), invested in Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders (HSD).
GERSED Belgium is affiliated with the EDS Society Global Affiliation Program.
The purpose of this association is:
-the exchange of knowledge and experience on the diagnosis and treatment of Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD)
-organisation of epidemiological surveys
-enriching the semiological knowledge of EDS
-therapeutic prospectives and evaluation of treatments
-organising training for health professionals and social actors
-the organisation of clinical and therapeutic education sessions for patients and their families
-producing scientific works and books on EDS
-to promote the social and therapeutic rights of EDS patients
President of GERSED Belgium:
Dr Stéphane DAENS, MD, Internal Medicine-Rumatology, Member of GERSED France, Member of the EDS Society Global Affiliation Program (GERSED Belgium).
Prof Stephen W. PORGES, PhD, Behavioural Neuroscience, North Carolina, USA
Prof Anne MAITLAND, MD, PhD, Immunology, Allergology, Mast Cell Disorders, New York, USA
Prof Andràs PALDI, Msc, PhD, Geneticist and Epigeneticist, Paris, France
Dr Isabelle BROCKMD, Clinical Research, New York, USA & President of GERSED France
http://www.qolify.org; http://www.3-pillars-therapeutics.com; http://www.gersed.com
Dr Katja KOVACICMD, Pediatric Gastroenterology, Wisconsin, USA
New book published by GERSED Belgium asbl (594 pages, available on Amazon, May 2020)
Available in Kindle ebook format (January 2022).
Copyrighted by Stéphane Daens, 2020© ; Cover Artwork by RAAL (email@example.com), Descente, 2016©
14/01/2022. NEWS: our book "Transforming Ehlers-Danlos Syndrome" is released today and is available on Amazon platforms worldwide:
Copyrighted by Stéphane Daens, 2022© ; Cover Artwork by RAAL (firstname.lastname@example.org), Breaking down, 2016©
Copyrighted by RAAL, Breaking Down, 2016© (email@example.com)
- Sale of the book in French " apprivoiser le syndrome d'Ehlers-Danlos " for the holidays. -5€
- Price reduction of the book "Transforming Ehlers-Danlos Syndrome" (Daens et al.) to $49.95 for the holidays (instead of $69.50)
- In these difficult and soon to be holiday periods, we are lowering the price of the kindle ebook of the book "taming Ehlers-Danlos syndrome" (S.Daens et al., 2022) to 29,50€ (instead of 37,50€), available
Take care of yourself!
The GERSED BELGIUM.
- New nomination as Honorary President of GERSED Belgium: Dr Richard Amoretti, cardiologist, Paris, France
- Laws and decrees on the development of education in Belgium.