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Link to our Facebook page:
https://www.facebook.com/GERSED.Belgique
We are also present on Instagram and Twitter: @gersed_belgium
GERSED Belgium is the Study and Research Group for Ehlers-Danlos Syndrome (Belgium) and was created in October 2017 by health professionals (specialist and general practitioners and paramedics), invested in Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders (HSD).
It is recognised as a NETWORK OF EXPERTS for Ehlers-Danlos syndrome on the ORPHANET Rare Disease Portal (INSERM - Institut national de la santé et de la recherche médicale).
GERSED Belgium is affiliated and recognised by theEDS Society.
The purpose of this association is:
-the exchange of knowledge and experience on the diagnosis and treatment of Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD)
-bibliographic information
-organisation of epidemiological surveys
-enriching the semiological knowledge of EDS
-therapeutic prospectives and evaluation of treatments
-organising training for health professionals and social actors
-the organisation of clinical and therapeutic education sessions for patients and their families
-producing scientific works and books on EDS
-to promote the social and therapeutic rights of EDS patients
President of GERSED Belgium:
Dr Stéphane DAENS, MD, Internal Medicine-Rumatology, Member of GERSED France, coordinator of an Orphanet/INSERM Expert Network, member of the EDS Society...
http://www.docteurdaens.be
http://claude.hamonet.free.fr/fr/sed.htm
http://www.reumatologia-dr-bravo.cl
Prof Stephen W. PORGES, PhD, Behavioural Neuroscience, North Carolina, USA
http://www.stephenporges.com
Prof Anne MAITLAND, MD, PhD, Immunology, Allergology, Mast Cell Disorders, New York, USA
https://www.drannemaitland.net
https://www.mountsinai.org/profiles/anne-l-maitland
https://3-pillars-therapeutics.com/providers/
https://www.uab.cat/web/postgraduate/phds/all-phd-programmes/coordination-1345467765326.html?param1=2013¶m2=1345657423398
Prof Andràs PALDI, Msc, PhD, Geneticist and Epigeneticist, Paris, France.
https://www.ephe.fr/ecole/nos-enseignants-chercheurs/andras-paldi
https://www.ijm.fr/895/equipes/cellules-souches-developpement-et-evolution.htm
https://www.operapadrepio.it/it
http://www.painri.com
https://chirec.be/en/specialists-and-services/doctors/181187-georges-obeid/
Honorary Members:
Dr Isabelle BROCKMD, Clinical Research, New York, USA & President of GERSED France
http://www.qolify.org; http://www.3-pillars-therapeutics.com; http://www.gersed.com
Dr Katja KOVACICMD, Pediatric Gastroenterology, Wisconsin, USA
https://childrenswi.org/physician-directory/k/kovacic-katja-k
New book published by GERSED Belgium asbl (594 pages, available on Amazon, May 2020)
Available in Kindle ebook format (January 2022).

Copyrighted by Stéphane Daens, 2020© ; Cover Artwork by RAAL (raal.painter@gmail.com), Descente, 2016©
14/01/2022. NEWS: release today of our book in English: "Transforming Ehlers-Danlos Syndrome" which IS available on Amazon platforms worldwide:

Copyrighted by Stéphane Daens, 2022© ; Cover Artwork by RAAL (raal.painter@gmail.com), Breaking down, 2016©
Corrected index of the book in English: https://irp.cdn-website.com/1d3a3ce3/files/uploaded/INDEX%20TRANSFORMING%20EDS%20UPDATE.pdf





Copyrighted by RAAL, Breaking Down, 2016© (raal.painter@gmail.com)
- Important : Mysterious cancellations of "New Patient" appointments from Dr Daens' server ...
- Update by Dr Stéphane DAENS, President of GERSED Belgium, on skin biopsy and ultrastructural examination of the dermis by electron microscopy (EM) in EDS:
- GERSED BELGIUM 2023 Annual General Meeting
- GERSED Belgium & EDS Society
- Sed and Autism Conference