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GERSED Belgium

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GERSED Belgium as bl (non-profit association = association under the 1901 law in France) is the Study and Research Group forEhlers-DanlosSyndrome (Belgium) and was created in October 2017 by health professionals (specialist and general practitioners and paramedics), involved in Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders (HSD).

It is recognised as a NETWORK of EXPERTS in Ehlers-Danlos syndrome on the rare disease portal ORPHANET (INSERM - National Institute of Health and Medical Research).

The purpose of this association is:

exchange of knowledge and experience on the diagnosis and treatment of Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD)
- bibliographic information
- organization of epidemiological surveys
- enrichment of semiological knowledge of EDS
- therapeutic prospects and evaluation of treatmentstherapeutic prospectives and evaluation of treatments
-organization of trainings for health professionals and social actors
-organization of clinical and therapeutic education sessions for patients and their families
-production of scientific works and books on EDS
-recognition of the social and therapeutic rights of EDS patients

President of GERSED Belgium:

Dr Stéphane DAENS, MD, Internal Medicine and Rheumatology, Member of GERSED France, coordinator of an Orphanet Expert Network (GERSED Belgium).
http://www.docteurdaens.be
 
Secretary:
 
Ms Patricia HERLANT, educator specialising in disability situations.
 
Treasurer:
 
Mrs. Tamara SADIGHI, Ortho-bandagist.
 
Vice President:
 
Dr Daniel GROSSIN, MD, GP, President of GERSED France.
http://www.gersed.com
 
Members appointed Honorary Presidents:
 
Prof Em Claude HAMONET, MD, PhD, Physical and Rehabilitation Medicine, Doctor of Social Anthropology, Paris, France
http://claude.hamonet.free.fr/fr/sed.htm

Prof Em Rodney GRAHAME, CBE, MD, PhD, FRCP, FACP, FRSA, Rheumatologist, London, UK
Prof Jaime F. BRAVO, MD, PhD, rheumatologist, Chile and USA
http://www.reumatologia-dr-bravo.cl
Prof Stephen W. PORGES, PhD, Behavioral Neuroscience, North Carolina, USA
http://www.stephenporges.com
Prof Anne Maitland, MD, PhD, Immunology, Allergology, Mast cell disorders, New York, USA
https://www.drannemaitland.net
https://www.mountsinai.org/profiles/anne-l-maitland
https://3-pillars-therapeutics.com/providers/
Prof Antonio BULBENA, MD, PhD, MSc,Psychiatrist , Barcelona, Spain.
https://www.uab.cat/web/postgraduate/phds/all-phd-programmes/coordination-1345467765326.html?param1=2013¶m2=1345657423398
Prof Andràs PALDI, Msc, PhD, Geneticist and Epigeneticist, Paris, France
https://www.ephe.fr/ecole/nos-enseignants-chercheurs/andras-paldi
Prof Michel VERVOORT, MSc, PhD, fundamental geneticist, Paris, France.
https://www.ijm.fr/895/equipes/cellules-souches-developpement-et-evolution.htm
Prof Marco CASTORI, MD, PhD, Medical Genetics, IRCCS-Casa Sollievo della Sofferenza Hospital, San Giovanni Rotondo (Foggia, Italy)
Dr Pradeep CHOPRA, MD, MHCM, Algologist, Brown Medical School, RI, USA
http://www.painri.com
Dr Trinh HERMANNS-LËMD, PhD, dermatologist and dermatopathologist (electron microscopy), Verviers, Belgium
Dr Kambyse SAMII, MD, Internist and Cardiologist, Brussels, Belgium
Dr Georges OBEID, MD, internist and cardiologist, Brussels, Belgium
https://chirec.be/en/specialists-and-services/doctors/181187-georges-obeid/

Honorary Members
:

 

Dr Isabelle BROCKMD, Clinical Research, New York, USA
Dr Katja KOVACICMD, Pediatric Gastroenterology, Wisconsin, USA

 

New book published by GERSED Belgium asbl (594 pages, available on Amazon, May 2020)

 

 

Dr Stéphane DAENS and 20 international collaborators (Belgium, France, USA, Chile)

 

 

 

23/02/2021. NEWS: Soon our book in English language: "Transforming Ehlers-Danlos Syndrome" which will be available on the Amazon platform (for June-July 2021, we hope).

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Note: 5 out of 5.