A wonderful tribute to the book by Dr. Daens and colleagues, “2022 — Transforming Ehlers-Danlos Syndrome, Stéphane Daens & Isabelle Dubois-Brock and colleagues.”
It is sufficiently well-recognized to have been included in the "Selected Resources" bibliography of the 2022 report by the National Academies of Sciences, Engineering, and Medicine in the United States. This is a fairly notable institutional reference.
(National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Care Services; Committee on Selected Heritable Disorders of Connective Tissue and Disability; Wedge RA, Cartaxo T, Spicer CM, et al., editors. *
* Washington, D.C.: National Academies Press (US); July 8, 2022.)
Let's keep up the fight and continue making progress in the field of SED!
https://www.ncbi.nlm.nih.gov/books/NBK584976/?utm_source=chatgpt.com