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https://www.facebook.com/GERSED.Belgique

We are also present on Instagram and Twitter: @gersed_belgium

GERSED Belgium is the Study and Research Group for Ehlers-Danlos Syndrome (Belgium) and was created in October 2017 by health professionals (specialist and general practitioners and paramedics), invested in Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders (HSD).

It is listed as a NETWORK OF EXPERTS in Ehlers-Danlos syndrome on the ORPHANET rare diseases portal (INSERM - Institut national de la santé et de la recherche médicale).

GERSED Belgium is affiliated and recognized by theEDS Society(Global Affiliation Program).

The purpose of this association is:
-the exchange of knowledge and experience on the diagnosis and treatment of Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD)
-bibliographic information
-organisation of epidemiological surveys
-enriching the semiological knowledge of EDS
-therapeutic prospectives and evaluation of treatments
-organising training for health professionals and social actors
-the organisation of clinical and therapeutic education sessions for patients and their families
-producing scientific works and books on EDS
-to promote the social and therapeutic rights of EDS patients

MEMBERS OF THE GERSED BELGIUM BOARD.
 

President of GERSED Belgium:
Dr Stéphane DAENS, MD, DATC, Internal Medicine-Rheumatology, Founding President of GERSED Belgium, Member of GERSED France.
http://www.docteurdaens.be

Secretary:
Ms Patricia HERLANT, educator specialising in disability situations.
 
Treasurer:
Mrs. Tamara SADIGHI, Ortho-bandagist.
 
Members appointed Honorary Presidents:
 
Prof Em Claude HAMONET, MD, PhD, Physical and Rehabilitation Medicine, Doctor of Social Anthropology, Paris, France
http://claude.hamonet.free.fr/fr/sed.htm

Prof Em Rodney GRAHAME, CBE, MD, PhD, FRCP, FACP, FRSA, Rheumatologist, London, UK
Prof Jaime F. BRAVO, MD, PhD, Rheumatologist, Chile and USA
http://www.reumatologia-dr-bravo.cl
Prof Stephen W. PORGES, PhD, Behavioural Neuroscience, North Carolina, USA
http://www.stephenporges.com
Prof Anne MAITLAND, MD, PhD, Immunology, Allergology, Mast Cell Disorders, New York, USA
https://www.drannemaitland.net
https://www.mountsinai.org/profiles/anne-l-maitland
https://3-pillars-therapeutics.com/providers/
Prof Antonio BULBENA, MD, PhD, MSc, Psychiatrist, Barcelona, Spain.
https://www.uab.cat/web/postgraduate/phds/all-phd-programmes/coordination-1345467765326.html?param1=2013¶m2=1345657423398
Prof Andràs PALDI, Msc, PhD, Geneticist and Epigeneticist, Paris, France.
https://www.ephe.fr/ecole/nos-enseignants-chercheurs/andras-paldi
Prof Michel VERVOORT, MSc, PhD, fundamental geneticist, Paris, France (1970-RIP 2022).
https://www.ijm.fr/895/equipes/cellules-souches-developpement-et-evolution.htm
Prof Marco CASTORI, MD, PhD, Medical Genetics, IRCCS-Casa Sollievo della Sofferenza Hospital, San Giovanni Rotondo (Foggia, Italy)
https://www.operapadrepio.it/it
Dr Pradeep CHOPRA, MD, MHCM, Algologist, Brown Medical School, RI, USA
http://www.painri.com
Dr Trinh HERMANNS-LËMD, PhD, dermatologist and dermatopathologist (electron microscopy), Verviers, Belgium
Dr Kambyse SAMII, MD, Internist and Cardiologist, Brussels, Belgium
Dr Georges OBEID, MD, internist and cardiologist, Brussels, Belgium
https://chirec.be/en/specialists-and-services/doctors/181187-georges-obeid/
Dr Richard AMORETTI, MD, Cardiologist, France

Honorary Members
:

Dr Katja KOVACICMD, Pediatric Gastroenterology, Wisconsin, USA
https://childrenswi.org/physician-directory/k/kovacic-katja-k

New book published by GERSED Belgium asbl (594 pages, available on Amazon, May 2020)

Available in Kindle ebook format (January 2022).

Dr Stéphane DAENS and 20 international collaborators (Belgium, France, USA, Chile)

Copyrighted by Stéphane Daens, 2020© ; Cover Artwork by RAAL (raal.painter@gmail.com), Descente, 2016©

14/01/2022. NEWS: our book "Transforming Ehlers-Danlos Syndrome" is released today and is available on Amazon platforms worldwide:

Copyrighted by Stéphane Daens, 2022© ; Cover Artwork by RAAL (raal.painter@gmail.com), Breaking down, 2016©

Corrected index of the book in English: https://irp.cdn-website.com/1d3a3ce3/files/uploaded/INDEX%20TRANSFORMING%20EDS%20UPDATE.pdf

Copyrighted by RAAL, Breaking Down, 2016© (raal.painter@gmail.com)

Note: 5 out of 5.